I’m scared that these side effects from which ever drug in the cocktail is doing it is pushing me toward an eating disorder. Nothing tastes right. Not looks or smells appetizing. I ate a bowl of rice yesterday for lunch. That was it. Somewhere around 500 calories. And I taught 5 classes. I came home and took my meds (damn will phenobarbital knock the hell out of you), watched TV and went to bed.
I got up this morning. Took the meds. Went to see Dr. P who happens to have a nifty new toy. It let’s you visualize (a very small part) of the vascular system. It’s kind like shining a flash light through your hand (am I the only kid that thought it was cool it came out red?) The use the tip of your index finger, right above the nail bed. It was cool. And guess what. As usual it was fucked up. There isn’t one body system that’s working right. Well, I guess my skin is okay. I’ll probably wake up covered in pimples tomorrow with my luck. So looking at a bunch of pictures, he says it’s looking like a combination of chronic fatigue (duh, I’d bet anything CFS and FM are related), drug side effects (how ironic considering how many drugs I’m on), and a connective tissue disease (which one, who knows). I don’t know exactly what test the rheumy ran, but he’s saying Fibro.
So I guess I’m going to go back to Dr. P and see if I can get printouts of the normal and mine. Even I could see how abnormal it looked. Instead of nice light pink, straight loops, I had dark red squiggle loops. I also had more than normal. That I can take to rheumy. I know Dr. P is going to call him.
So I’m scared of that. I’ve never been scared to google stuff before, but I don’t want to know what else might be wrong. I don’t know if I should get a referral to a hematologist or what. I’ve always wanted to be informed. No matter how scary (don’t google fasciectomy or whatever that thing was that I thought they were going to have to do on my leg) I wanted to know. Part curiosity. Part control issues.
Back to my original thing. Yesterday rice. Today, nothing all day. The rice was at noon yesterday. I came home at 10 after 4 classes (and breaks, imagine that) and ate an egg. Getting that egg into me was the hardest thing. It’s not a classic eating disorder as such. But there’s something wrong with me and food. It left a bitter taste in my mouth.
My stomach says feed me (grumble grumble) but my brain and my nose and my mouth just scream no.
How do I move past this? I used to love to cook and eat. Part of this is the lack of kitchen. I have no counter space and a toaster oven. I do most of my cooking in a crock pot.
It’s sad, but I have to blame part of this on the fibro. There were weekends where I couldn’t get out of bed to go to the store if I wanted. I have a short vacation. I plan on spending tomorrow resting. Trying to let my body heal itself. At least a little bit. If I can I’ll go to the doctors. If not. Then I’ll do what my body tells me what I need.
It’s past my bed time, but I needed to get this out. It’s not as scary. But the unknown is crazy for me. It’s a shame the science thing didn’t work out for me. But in the end, all there is is the unknown.